Advocacy organizations and websites that can provide you with information about short bowel syndrome.  |
|
American Society of Parenteral and Enteral Nutrition (A.S.P.E.N.) The mission of A.S.P.E.N. is to improve patient care by advancing the science and practice of clinical nutrition and metabolism. Crohn's and Colitis Foundation of America (CCFA) The mission of the CCFA is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. National Organization for Rare Disorders The National Organization for Rare Disorders is dedicated to helping the nearly 30 million Americans with rare diseases, and the organizations that serve them, through programs of education, advocacy, research and patient services. The Oley Foundation Founded in 1983 by Lyn Howard, MD, and her patient, Clarence "Oley" Oldenburg, the Oley Foundation is a national, independent, nonprofit 501(c)(3) organization that provides information and psychosocial support to consumers of home parenteral (IV) and enteral (tube-fed) nutrition (homePEN), helping them live fuller, richer lives. The Foundation also serves as a resource for consumers' families, homePEN clinicians and industry representatives, as well as other interested parties. Programs are directed by the staff, and guidance is provided by a board of dedicated homePEN professionals and patients. The Short Bowel Syndrome Foundation The Short Bowel Syndrome Foundation’s (SBSF) mission is to educate, support, and empower patients who live with the condition and the healthcare providers who help patients to manage Short Bowel Syndrome. SBSF empowers patients and their families to live fuller lives by connecting them to necessary resources, creating a lifeline of hope. |
|
